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| North Dakota Division of Medical Genetics Program is seeking input from multiple stakeholders as we conduct a statewide assessment of genetics services for improving genetics services and resources. We are interested in learning about your experiences with genetics in your primary care practice and hope that you will take 5-10 minutes to give us your input! Thank you! |
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| Background Information (Please fill in your answer as appropriate) |
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Professional Degree:
MD
DO
FNP
Other
- if Other:
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Number of years in practice:
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County where you practice:
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Setting where you practice:
Urban (50,000+)
Suburban (25,000+)
Semi-Rural (3,000+)
Rural
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Do you do OB or prenatal care as part of your practice?
Yes
No
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| Questions (Please fill in your answer as appropriate) |
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1. How much of an impact do you think that new information about genetics and medicine (eg, Human Genome Project) will have on how you care for your patients? |
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Currently: |
No impact
Little impact
A lot of impact
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In the next 5 years: |
No impact
Little impact
A lot of impact
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In the next 10 years: |
No impact
Little impact
A lot of impact
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2. How many of your patients ask you questions about possible genetic conditions in themselves or their families? |
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None
Few
Many
Most
All
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a. Over the past 5 years, has this number changed significantly? |
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Decreased
Stayed about the same
Increased
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3. Have you ever referred one of your patients to a genetics service provider (clinical geneticist or genetic counselor) for any type of clinical genetic service (counseling, evaluation, genetic testing)? |
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a. If Yes, for the most part, have you been satisfied with those services? |
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Yes
No
Not Sure
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b. If No, do you know of a clinical genetics referral source? |
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Yes
No
Not Sure
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4. What genetic services needs do your patients have that are NOT being met, if any? |
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5. What genetic services needs do your patients have that ARE being met? |
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6. Has the issue of lack of a payment source for clinical genetic services hindered or prevented you in making a referral for these services? |
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Yes
No
Not Sure
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7. Has the issue of patient language or cultural barriers hindered or prevented you from making a referral for a clinical genetics service? |
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Yes
No
Not Sure
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8. Are there other barriers or issues that have prevented or hindered you from making a referral? |
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Yes
No
Not Sure
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(Please feel free to list any barriers or issues that you or your patients have faced) |
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9. What suggestions do you have for helping your patients overcome barriers to obtaining genetic services? |
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10. Do you feel that the availability of genetics services in your community is adequate to meet the needs of your patient population? |
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Yes
No
Not Sure
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11. How would you describe your own current knowledge about genetics? |
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Low
Average
Above Average
High
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12. In the past 3 years, approximately how many continuing education hours have you spent on any subject related to medical genetics? |
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0 hours
1-4 hours
5-8 hours
9-24 hours
25+ hours
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13. Would you be interested in having a genetics-related topic at a future NDFP meeting (or other CME conference)? |
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Yes
No
Not Sure
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a. If so, what topic or topics would you be interested in learning more about (Check any that apply) |
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Prenatal Screening/Diagnosis (eg, Cystic Fibrosis Carrier Screening, New technologies)
Birth Defect Prevention (eg, Folic Acid, Fetal Alcohol Syndrome)
Expanded Newborn Screening (eg, Use of new technologies)
Management of Common Genetic Conditions (eg, Spina Bifida, Down Syndrome, etc…)
Cancer Genetics (eg, Breast Cancer, Colon Cancer)
Adult Screening for Genetic Disease (eg, Hemochromatosis)
Genetic Testing for Adult Onset Conditions (eg, Huntington’s Disease, Alzheimer’s Disease, other)
Genetics and Common Chronic Conditions (eg, Obesity, Cardiovascular disease, Diabetes)
Pharmacogenomics (eg, Targeting medication therapy to particular genotypes)
Gene-Environment Interaction
Ethical, Legal, Social, Financial Issues related to Genetics (eg, Genetic privacy, insurance and employment discrimination, reimbursement for genetic services)
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If any others please list below |
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14. Any other comments or questions? |
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